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Cigarettes Shop Guide : Health : Conditions and Diseases : Neurological Disorders : Muscle Diseases : Muscular Dystrophies : Support Groups :

Chats and Forums

12 pages found in Chats and Forums:

Christians With Duchenne Muscular Dystrophy
Mailing list for Christians who have Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/ChristiansWithDuchenneMuscularDystrophy/

DMD Support List
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/dmdsupport/

Duchenne Muscular Dystrophy Support eGroup
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/Duchenne_Muscular_Dystrophy/

Dysferlin
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
http://health.groups.yahoo.com/group/dysferlin/

FSH Friends Forum
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
http://health.groups.yahoo.com/group/FSH_Friends/

FSH Muscular Dystrophy
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
http://health.groups.yahoo.com/group/FSHmusculardystrophy/

Limb Girdle Muscular Dystrophy
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
http://health.groups.yahoo.com/group/Limb_Girdle_Muscular_Dystrophy/

MDA All the Way
Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
http://health.groups.yahoo.com/group/mdaalltheway/

Muscle Disease
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
http://health.groups.yahoo.com/group/muscledisease/

The Muscular Dystrophy Forum
An online support group for people affected by any neuromuscular condition.
http://health.groups.yahoo.com/group/The_Muscular_Dystrophy_Forum/

Myotonic Dystrophy 2
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
http://health.groups.yahoo.com/group/MyotonicDystrophy2/

PROMM (Proximal Myotonic Myopathy)
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
http://health.groups.yahoo.com/group/PROMM/

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