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Cigarettes Shop Guide : Health : Support Groups : Conditions and Diseases :

Facial Differences

Apert Syndrome (9)

Cleft Lip and Palate (27)

Craniosynostosis (2)

Langer-Giedion Syndrome (2)

 

Parry-Rombergs Syndrome (4)

Smith-Magenis Syndrome@ (3)

Stickler's Syndrome (3)

Treacher Collins Syndrome (4)

17 pages found in Facial Differences:

AboutFace
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.aboutfaceinternational.org/

Beneath the Surface
Offers support and understanding to individuals of facial difference.
http://beneaththesurfaceweb.com

Birthmark Support Group
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/

Cancer Of The Eye Linkline (CELL)
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
http://pages.zoom.co.uk/cell/index.htm

Changing Faces
UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
http://www.changingfaces.org.uk/

Children's Craniofacial Association
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com

The Craniofacial Society of Great Britain and Ireland
Information about the society, which is a multidisciplinary forum for specialists.
http://www.craniofacialsociety.org.uk/

The DRM WebWatcher: Facial Differences
A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FACE.html

FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org

Foundation for Faces of Children
Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org

Johns Hopkins Center for Craniofacial Development and Disorders
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
http://www.hopkinsmedicine.org/craniofacial/

Let's Face It USA
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
http://www.faceit.org/

Moebius Syndrome
Moebius Syndrome support, information and resource site.
http://www.moebius1.org

The Personal Side of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html

Sincere Meditations
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm

Support Works Online
Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm

XP Support Group
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk

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